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Organized and developed by The International 22q11.2 Foundation, 22q at the Zoo is a worldwide event that helps raise the public awareness of the chromosome 22q11.2 medical syndromes as well as to provide to the families affected by these syndromes, a chance to socialize and network. These syndromes are present in about 1 in 1,000 live pregnancies and affect different systems of the body and manifest themselves by heart defects, palate differences, growth delay, kidney problems, feeding and gastrointestinal difficulties, immune system deficiencies, cognitive, speech delays, ADHD, and autism, among others.
Cities and towns organize and pay for putting on their own 22q at the Zoo event, which helps to support local families affected by the 22q syndrome. You are cordially invited to the local 22q at the Zoo event on Saturday, May 19, 2018 at the Santa Ana Zoo. Other locations will hold their events the next day on Sunday, May 20, 2018.
Many of the 22q11.2 syndromes are only properly diagnosed through genetic testing, which can cost thousands of dollars and is often beyond the reach of family resources and insurance coverage. The Help Undiagnosed Children Foundation (hucf) is a non-profit organization whose mission is to pay for genetic testing for sick children in financial need so that they may obtain the correct diagnosis and then receive the appropriate medical treatment. The hucf is supporting this event and will be represented there to talk with people about our important work to help these sick children to have a better life.
During the event, presentations will be made about some of the latest medical developments in this area and as well to offer mutual support to families with members struggling with this wide array of diseases. This is also a day for some fun and to bring smiles to many faces, especially to those of the children!
The Help Undiagnosed Children Foundation is a 501 (c) (3) entity with EIN # 47-2527281. Donations are greatly appreciated and may be directed to the Help Undiagnosed Children Foundation at the address listed below or made through our website at www.hucf.org.
For Further Information Contact: Rachel Solenberger, (619) 208-6535.